“You’ve only got three choices in life: Give up, give in, or give it all you’ve got.”
Thank you all for your kindness and support over the last few weeks as we have been facing Brandon’s leukemia relapse. It’s been so comforting to hear so many thoughtful words from so many amazing people. We feel very blessed to have such an amazing support system.
As you may know, Brandon has been transferred into the care of his leukemia doctor due to the progression of his leukemia. We met with the leukemia team a few times last week to discuss the next treatment steps. We are thankful that there are many treatment options available to Brandon. As it stands, the leukemia team is looking into all clinical trials and approved treatments to determine which option will be in his best benefit.
The anti-rejection medication that Brandon has been on since his transplant makes him ineligible for certain trials and treatments for a variety of reasons. The leukemia and transplant teams have been coordinating to transition him off this medication as quickly (and safely) as possible so that he is eligible for these other treatments. So far, his dose has been reduced in half and he hasn’t had any complications. We are hoping and praying that he doesn’t experience any severe symptoms of graft-verses-host disease (where his donor’s cells attack his body) as he is taken off this medication. Please keep this in your thoughts and prayers! Although it is important to start treatment as soon as possible, the leukemia team feels it is in Brandon’s best interest to wait until he is eligible for some of the more promising options. They are taking a very calculated and precise approach (as they always have) to fighting this disease.
During this transition, Brandon is being supported with blood transfusions as needed and oral chemotherapy to keep his white blood cell count from becoming too elevated. We have had a difficult few of days, but overall he is doing very well. He has managed to stay infection free (knock on wood) and out of the hospital. We have been visiting the hospital 3 times a week for blood work, fluid and medication infusions, and blood transfusions as needed.
We will be meeting with the leukemia team this Friday and hope to have news about what treatment they have selected for Brandon. We trust in the amazing team of leukemia and stem cell doctors at MD Anderson who are working diligently to get Brandon the best care. We know that God is leading their way and pray that he opens their eyes to the best treatment available.
Thank you again for all your love and support. Please keep us in your thoughts and prayers as we transition to this next step. I will be sure to let everyone know if we receive any updates.
Watch out leukemia, we’re coming for you! We’re ready to give this all we’ve got!