Hey everyone, It’s transplant day +58!
I can’t believe we have almost made it to two months post-transplant! On transplant day, looking forward to day +100 seemed like this huge mountain we had to climb. Reaching day +60 means that we have reached another peak! I have to tell you, the view is beautiful! I am so thankful that we have made it to another important milestone and that Brandon is continuing to heal and improve every day.
We have continued with our Tuesday/Friday transplant clinic schedule and it has been wonderful! We’re still doing Brandon’s electrolyte and fluid infusions from home, which has been working out perfectly. Brandon’s blood cell counts continue to be fairly stable despite starting the new remission maintenance medication last week. However, he did need a shot of G-CSF to boost his white blood cell count on Tuesday since his neutrophils were getting a bit low. This is par for the course at this point after transplant. It will be many months before his blood cell counts normalize. I am just thankful that they are trending in the right direction!
With day +60 quickly approaching Brandon will be put through another series of tests to check his progress. Tomorrow, he will be having another bone marrow biopsy to search for any lingering leukemia and to see what percentage of his bone marrow are his donor’s stem cells. 30 days ago we got the best possible news when we learned that Brandon was in a complete remission and that 100% of his marrow consisted of his donor’s cells. We are hoping and praying for the same results. Please keep us in your thoughts and prayers as Brandon goes through this second round of post-transplant tests.
Brandon is continuing to improve and get stronger every day. The progress he has made since coming home is unbelievable. He can now make it through an entire day at the hospital without a wheelchair and he can do much more for himself on days at home. It is absolutely wonderful to see him getting back to being himself. He still has his tough days, but they are getting few and far between.
We have finally started to talk about life after leukemia and a stem cell transplant. With so much unknown this was something we hadn’t discussed for quite some time. We didn’t know what was happening in the next week, much less the next month or the next year. Last night we lay in bed and shared our dreams about our life moving forward. I can’t tell you how long I have been waiting to have that conversation. I knew it would come in time, when Brandon had begun to settle into his recovery and see himself as a cancer survivor. Last night I smiled ear-to-ear as he told me about his hopes and dreams. Life is truly beautiful and I am thankful for every day that I have Brandon by my side.
I am endlessly thankful for all the love and support that we continue to receive. We are so blessed to have such an amazing support team behind us on every step of this journey. I will continue to keep everyone updated as we continue with Brandon’s recovery.
Next stop: transplant day +100. I can’t wait to see the spectacular view once we arrive.