“When life give you a hundred reasons to cry, show life that you have a thousand reasons to smile.”
Hey everyone, it’s transplant day +20!
The last few days have been very trying for Brandon, myself, and our family. Brandon’s fevers have progressively gotten higher and more frequent. Despite tons of tests we are still unaware of what exactly is going on. Thankfully, at least we have some answers about what it’s not.
Today Brandon had an ultrasound of his liver, gallbladder, kidneys, and pancreas, which came back normal. He also had a HIDA scan to check his gallbladder function and that was normal as well. Additionally, no new bacteria have grown in the blood cultures and the other viral tests have been negative. While I am glad that nothing serious was found, I am also worried that we still don’t know what is causing his fevers.
We have been playing a waiting game over the last few days while the doctors tried to find the cause of Brandon’s fevers. Since his fevers have been getting progressively worse, they decided to start a stronger antibiotic despite not having a diagnosis. This is not ideal, but Brandon’s immune system is too weak to fight off something like this on its own. The new antibiotic is extremely strong and can have toxic effects on the body, which is why they delayed starting it for so long. I am hoping and praying that it wipes out whatever is causing his fevers so that he can get off of it as soon as possible.
Despite starting the new antibiotics, they will be running additional tests tomorrow to try and isolate the cause of the fevers (in case it’s not bacterial). I am hoping that things drastically improve within the next 24 hours so that we don’t need to go through any more anxiety inducing scans or tests. I am so ready for Brandon to start feeling better so that we can go home.
We also visited with the nephrologist today, which is just a fancy way of saying ‘kidney doctor’. She was not at all surprised that Brandon’s kidney function has decreased over the last few weeks. The conditioning chemotherapy and transplant process is very hard on the body, especially the kidneys. Furthermore, the large doses of antibiotics and antiviral medications have been adding extra stress. She is not too concerned at this time since his kidney function has leveled out over the last few days. She actually thought his kidney function (despite decreasing) looks pretty good considering all the medication that he is currently taking. They will continue to keep a close eye on his kidney function with the new antibiotic, but they are not too worried right now. Brandon’s kidney function should improve with time as he becomes more stable and is able to get off certain medications.
Please keep Brandon in your thoughts and prayers over the next 24 hours as this new antibiotic works to fight off whatever is causing his fevers. We’re hoping and praying that tomorrow he starts to feel much better! This is the last little road bump we need to cross before we can think about going home. I will continue to keep everyone updated with his progress.
Despite the difficult last few days, I am trying hard to keep things in perspective. We made it into remission and we made it to transplant! Six months ago that seemed that a steep mountain to climb; this is just a little hill in comparison. We are so blessed to be where we are today.
Thank you all for your constant love and support. We couldn’t do it without you.