“Difficult roads often lead to beautiful destinations.”
Hey everyone, it’s transplant day +9!
I am happy to say that although today has been difficult, it has been better than yesterday! Although Brandon is still in a lot of pain, his pain has been better controlled with the PCA pump and an increased dose of pain medication. He has also managed to get a bit more rest today, which he greatly needs.
Unfortunately, he did spike another high fever after running low-grade fevers for the last few days. More blood cultures have been drawn from each lumen of his CVC and his arm to check for blood infections. He also had a chest X-ray done to check for a lung infection but thankfully that came back normal. The doctors have increased the dose of his antibiotics and will continue to monitor him closely. At this point in the transplant process it is very common to run fevers since his white blood cell count is still zero.
Today was the third day of G-CSF injections and we are anxiously awaiting the arrival of some neutrophils (white blood cells)! The stem cells should start to engraft any day now, meaning that we will start to see his white blood cell count rise. We’re excited to see those little guys in action!
Earlier today I was talking to my mom when she asked, “how are you?” I answered, “Well, I’ve had better days.” After a bit of thinking and hesitation I added, “But you know, I’ve certainly had worse.” Weeks like this are hard; they are mentally, physically, and emotionally exhausting. But when I get sad or upset about what is happening today, I remember everything we have been through to get here. There have been times that people and circumstances have tried to rip away our hope and our joy. There have also been times that instead of seeing a white blood cell count of zero; I have seen one closer to 100. So you know, despite everything that is difficult right now, I KNOW things could certainly be worse.
Of all the lessons that I have learned in this experience, perspective has been the most significant. Perspective on what’s important, what others are going through, and especially perspective on what a bad day really is. Regardless of everything that happened, today is not a bad day. Today is a day where for the first time in a year we have hope for a cure. Today is a day that we can celebrate just how far we’ve come. Today may be hard, but there are better days around the corner. We just have to fight a little harder to get there. So here’s to good days and even greater days to come!
Thank you all for your love and support. We love you all so much!