“Never give up, great things take time.”
Hey everyone! It’s transplant day +17!
We got some exciting news today; Brandon’s doctors are aiming for discharge late next week! This is all considering that Brandon continues to improve over the weekend. Brandon is continuing to improve day by day and we are hoping that he makes huge progress by Monday.
A few things have popped up over the last few days that the doctor’s are keeping a watching eye on. Brandon’s partial thromboplastin time (PTT) has increased over the last few days. PTT is a blood test that determines how long it takes blood to clot. At the moment, it is nothing to be too concerned about since Brandon is not experiencing any bleeding. Since his PTT is getting progressively longer we met with a team of benign hematology doctors this afternoon. Their first thought was that his reduced clotting ability is being caused by a deficiency in vitamin K, which is used to make clotting factors. The human body is unable to store large amounts of vitamin K and relies on two different things to get the vitamin K that it needs. Vitamin K1 is found in green leafy vegetables and your gut bacteria produce vitamin K2. Since Brandon is no longer able to eat raw vegetables and has been on strong antibiotics for the last few weeks his body may not have access to the vitamin K it needs. They are going to be starting vitamin K supplements a few times a week to see if his blood clotting becomes more normalized. I am hoping and praying that it’s nothing more serious.
Unfortunately, Brandon has also spiked another 102-degree fever this evening. With this comes a whole new round of tests. They are currently drawing blood cultures from Brandon’s CVC and arm; and later tonight he will be having another chest X-ray and some other infectious testing. Aside from the fever, Brandon is feeling well so the doctors are not too concerned at this point. They are just being extra cautious with the possibility of a new infection. I’m sure we will be hearing from infectious disease tomorrow to see if they will be making any changes to his antibiotic regimen.
Although we are off to a rough start, we are hoping and praying for a good and uneventful weekend so that Brandon can be discharged later next week. Please keep us in your thoughts and prayers. This Tuesday will mark one month in the hospital and we are ready to go home!
Thank you all for your love and support!