“Be strong now because things will get better. It might be stormy now, but it can’t rain forever.”
Hey everyone, it’s transplant day +8! Today has been one of the more challenging days that we’ve had in a while.
Brandon woke up early this morning with an excruciating headache and body pains. The doctors ran a lot of tests today to check for anything concerning, but thankfully everything came back normal. They have decided that the most likely cause of the pain is due to the G-CSF injections that were started yesterday. These injections can cause bone pain due to inducing over activity of the bone marrow. Unfortunately, the injections need to continue so that the stem cells can engraft and grow.
Brandon was started on a PCA pump (a pump that delivers a steady flow of medication) to help with the pain. Thankfully this has provided some relief. Unfortunately, it took many hours to set up so Brandon was in a great deal of pain for most of the day. To make matters worse, he was also running a low-grade fever on and off all day. It’s absolutely horrible to watch someone you love hurting so much, while you can only do so little. I am relieved that he is doing better this evening and I hope that he is feeling better tomorrow.
Today Brandon was also started on a treatment for cytomegalovirus (CMV). CMV is a virus that can cause a great deal of complications for people that are immunocompromised, which is why Brandon has been regularly tested for it since his hospital admission. The virus was detected on admission but the levels have continued to rise now that his immune system is nonexistent. The doctors have also confirmed that his stem cell donor was CMV negative, meaning that once his new immune system starts to rebuild, he will not possess any antibodies to fight the virus. Therefore, they have decided to start treatment for the CMV before Brandon even feels the symptoms. Brandon has been started on a new anti-viral medication to treat the CMV, and he will continue to be monitored for its activity. At this time it’s nothing to be too concerned about, as this happens to a large majority of transplant patients and can be easily treated.
Tomorrow is a new day and I am hoping that it will be much better! Thank you all for your love, prayers, and support. Today was just a little pebble in the road. Better days are coming!